EU RD PLATFORM patient registries and cohorts services

Provided by EUROPEAN PLATFORM ON RARE DISEASE REGISTRATION (EU RD PLATFORM)

The European Rare Disease Registry Infrastructure (ERDRI) renders rare disease registries’ data searchable and findable. This is achieved through the provision of following components: European Directory of Registries (ERDRI.dor), Central Metadata Repository (ERDRI.mdr) and Pseudonymisation Tool.

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